Thank you to all 1000+ people who came out for the Shwachman Diamond Dash in 2011! Your commitment is greatly appreciated.This years race is June 16.
Please join us for this year's Shwachman Diamond Dash on Saturday June 16, 2012. You can register online now at JustFinish.net.
This year, we will also be hosting a bone marrow drive to help those with bone marrow failures. The Icla da Silva Foundation, Inc. will be in attendance to answer questions about bone marrow donation. See marrow.org & icla.org for more info.
Interested in becoming a corporate sponsor for the 2012 race? Please contact us at dashforacure@yahoo.com.
View all 2011 finisher videos here at Sayville Running Co's YouTube page
View all 2011 finisher times here at justfinish.net
Dylan Egan Kolar, an active 10 year old living in Sayville, was diagnosed at the age of one with a rare bone marrow failure syndrome called Shwachman Diamond Syndrome. Within his first year, Dylan received eight blood transfusions and was hospitalized a number of times for infections secondary to bone marrow insufficiency. He is currently doing very well under the guidance of the wonderful doctors of Cohen Children’s Hospital (formerly Schneider's). More research is necessary to help Dylan and all the other children struggling with Bone Marrow Failure Syndromes.
Read a special Thank-You from Jennifer Kolar, Dylan's mom.
Entire proceeds to benefit Shwachman-Diamond Project
2011 Dash For A Cure Thank You From Jennifer Kolar
Thank you so much for being here. Last night, after my kids went to bed, I sat down to write my annual thank you… to all of you. I sat alone in my thoughts, thinking of the year that has passed. They say time is measured by moments not minutes. I thought about life and [...]
Dylan’s Story
Dylan Egan Kolar, now a lively nine year old living in Sayville, was diagnosed with Shwachman-Diamond Syndrome (SDS) at the age of one. Within his first year, Dylan received eight blood transfusions and was hospitalized a number of times for infections secondary to bone marrow insufficiency. He is currently doing very well under the guidance [...]
What is SDS?
DISEASE INFORMATION First described in 1964, Shwachman-Diamond Syndrome is a rare disease which mainly involves the pancreas, bone marrow and skeleton, but other organs may also be affected. Next to Cystic Fibrosis, it is the most common cause of pancreatic insufficiency in children. For that reason, it is sometimes confused with Cystic Fibrosis; but in [...]
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